Evening Rian Doyle was born on September 8, 2006 to proud parents Scott and Ruth.
She arrived at 9:37 pm, weighed 7 lbs. 3 oz., and was 20.5 inches long.
Evening spent some time at Arnot-Ogden hospital in Elmira this weekend and was subsequently referred to Strong Medical Center in Rochester after being diagnosed with a heart condition. Scott updated us on Evening's condition today:
Just wanted to provide you a brief update on where we are at with Evening's condition. Her appointment at Strong yesterday confirmed that she has the congenital heart condition - tetralogy of Fallot. It is a condition where she basically has 4 current problems with her heart. The Strong Children's Hospital in Rochester's cardiology team is determining based on her anatomy when she should have surgery and how many surgeries she needs. They usually do one major bypass surgery to correct all the conditions at about 4 months of age, though in her case she may need two - one prior to the fix to install a shunt to help increase oxygen levels. The group will meet either this Thursday or next to determine when she needs surgery.
The trick now is to help her gain weight for her surgery and make sure she doesn't turn extremely blue. She is acting terrific and looks great right now.
Evening, Ruth and Scott are resting with family in Rochester, and expect to return to Ithaca next week. Scott and Ruth would like all of you to know how thankful they are for your support throughout the past weeks.
8 comments:
Congratulations on the new arrival! We think of you every day. Wishing all the best. She is absolutely breathtaking. Beautiful!!!
Jen Westling
Scott, Ruth, and Evening;
Thank you for posting the news, and previously for sharing your pictures right from your family's first hours. You all look truly blessed.
It is hard to imagine that peril lies in heart. Bitter news.
Sweet to know her condition is treatable. Eat up little girl. I will be thinking about you all and keep you in my prayers.
Will
Thanks for keeping us all posted on Evening's progress. Laura, Carl, and I are sending you our extra strength through whatever medium works.
I think I see some doyle eyes on that one... Wishing you the best through this tough time.
Scott& Ruth
Please know our prayers and heart felt thoughts are with you all. If there is anything you need ,or I can do for you DON'T delay in asking ! Peace, C Center Bill
Scott and Ruth,
Read your message about Evening. Pray things will come along okay. My prayers and thoughts are with you all. Let Grandma Rose know I'm thinking of her too.
Lucille Ferris
I have had you in my thoughts and prayers. I have also asked my mother to pray for you too!
What a blessing you have recieved in this beautiful little girl. Please know that my prayers are with you all, even though I don't know your family. The power of email shows, we all become connected. Children are to be loved and cherished, to often people forget this. I work at a children's pyschiatric unit, so I know, first hand how people affect childrens lives. May you have many years of wonderment and excitement with Evening. They grow quickly, time passes by rapidly. Enjoy every moment!!
Hi Again - read the update on Evening's progress. Excellent weight gain, keep it up :) Give my best to Grandma Rose. You are all in my prayers.
Lucille
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