Things are moving - perhaps a bit too fast. Kellyn had another remarkable day recovering in the PICU. Added lines including her carotid line (neck) and arterial (wrist) were removed. She also was taken off of oxygen and has been breathing well on her own. She is shifting to taking meds orally which has been tricky. Ruthie also had the opportunity to feed her yesterday and she did quite well.
Due to a full PICU and the fact that she was doing so well she has been moved out of the PICU and into a post-cardiac pediatric wing. She's been able to rest and sleep in our arms - at moments a very peaceful night - its really been wonderful to see her sleep in our arms. Her oxygen levels continue to remain strong, though she is emptying a significant amount of fluid from her chest tube and this remains the most significant remaining concern. Prior to being discharged she needs to decrease this drainage and of course not have drainage build up in her thoracic cavity.
Continued to be floored by how great the vast majoirty of the nursing staff is. Very compotent and caring. I'm struck by what a noble, intense profession this is. They certainly don't get the credit they deserve for the "front line" work. Having said that, being embedded in the workplace of others is very interesting and difficult. I find it difficult to tolerate some of the personal conversation - albeit with a minority of the staff.
Also, can't say enough about the great staff, volunteers and space of the Ronald McDonald House. We've had the good fortune to spend portions of the last several nights in the house within the hospital - one floor up from the PICU - its been really helpful and outstanding.
Thanks again for the well wishes, food and prayers. It means the world.
No comments:
Post a Comment